living life yellow.
the ramblings of a 21 year old
This was a post I originally posted to explain what I was going through as many people did not understand. This post was originally written on 14/8/2017.
As some of you may know, on March 15th this year I had a laparoscopic surgery in which I was diagnosed with stage two endometriosis. This has been something I have had symptoms for since I was about 13 years old but was unfortunately misdiagnosed for many years.
Basically for those who don't know, endometriosis is a disease where the endometrium, a tissue like what lines the uterus, is found outside of the uterus.
There is no current cure for endometriosis.
Some of the symptoms of endometriosis are
The only way to be diagnosed with endometriosis is through a laparoscopic surgery. Basically they pump you up like a beach ball, put a camera through your belly button, make a couple other incisions to move your organs around and have a look around.
My endometriosis largely effects my life. I don't want this blog post to come off as "woe is me," but I want to raise awareness for one in ten women who also suffer from this chronic disease.
This year there has probably not been a week where I have not missed a day off school. As I'm writing this I am currently on my third week of missing class due to being in a large amount of debilitating pain. A lot of people don't understand the pain behind endometriosis and just assume its bad period cramps. This is really frustrating as it is so much more than that. I hate missing out on social events because of my endo and I'm sure my friends get sick of me canceling last minute due to a bad flare up. Even at my graduation Ball, I was only there for half and hour, before having to leave thanks to the unstoppable pain.
The thing I find the hardest about all of this is that it is so hard to be seen and get help. After being in the emergency department and hospital multiple times last week, after having an ultrasound, the technician believed I had an adhesion on my uterus, meaning that the endometrium which is outside of my uterus had connected it to another body part. I got sent home with a prescription of tramadol which helps with the pain somewhat, but makes me ridiculously sleepy, dopey and nauseous. I also now am on a four month waiting list to see a specialist who then will hopefully put me on another waiting list to have another laparoscopic surgery. Oh, the joys of the public health system..
Ideally I would love to have a life where I didn't have a small pharmacy of painkillers, or an abundance of hot water bottles, wheat packs and a large power bill thanks to the amount of baths I have (sorry mum..). I know there is a lot of people out there with a lot worse going on than me, and I'm so grateful for the days where I do feel fine.
It all just becomes too much sometimes. Easiest way to explain it is that I'm just over it all. It does take toll mentally when some people don't believe you're in pain or they don't understand what you are going through. It's really stressful when you are so behind at school but are just too sick to go. Being in bed and being too sore to get up is upsetting and yeah, mentally and physically, it just sucks.
I'm so lucky to have some gorgeous endo-angels in my life who have supported me since before my surgery. I had no idea what to expect going in, and they prepared me for everything. My parents, boyfriend and best friends are also the best. They're an awesome pitcrew whether it be driving me round when I'm too doped up on tramadol, waiting 7 hour in ED or dropping a phone charger off at the hospital. I don't know what I would do without them.
Well if you've gotten this far, thanks for reading/listening to my rant and if you're going through your own endometriosis struggle, I'm sorry, it really does suck <3