living life yellow.
the ramblings of a 21 year old
What has happened since the initial rant...
My experience with the specialist and my current endometriosis life plan
It has almost been a month since I wrote the first blog post over on my other blog and a lot has happened since then. I suggest you get a cup of tea because it's going to be a long one.
If you read the first blog, you will know that I had been in and out of hospital and now have been waiting to see a specialist. Yesterday I saw a specialist and it didn't go quite the way I expected it to.
Due to all my tests and scans, once again looking normal, she was hesitant to refer me for another surgery. This was because she believed that I was experiencing hypersensitivity, meaning that when I was only feeling a small amount of pain, I would blow it out of proportion in my head. She was concerned that if this is the case, I will still be in pain even after the surgery. This is something that really set me over the edge. I had a full blown meltdown in the room in front of my mum, my specialist and the poor med student that probably felt super awkward. I was bawling my eyes out.
Personally I believe that I may have an adhesion on my uterus, meaning the glue-like endo has attached to some other organ in my body. The reason I think this is because the pain I am experiencing is very similar to what my endo friends have described, plus when I had my ultrasound, the ultrasound technician was talking to me about how my uterus was sitting ridiculously far back. When she also tried prodding my uterus and left ovary there wasn't much movement.
So as you can imagine it is very frustrating when you are being told that it could just all be in your head...
She did however, after all the tears, run my case past her consultant who has agreed to put me on his waiting list. Hopefully within 4 months, I will have another laparoscopy to hopefully find what is causing me this immense pain!
I was lucky to have my mum with me to advocate for me as when you are very tired and sore it can be hard to get your points across.
I left feeling very deflated as I was very excited to finally see a specialist as I just want to get my life back on track. Since being sick I have become a lot more anxious and not myself. I also struggle containing my thoughts sometimes as I have a lot of time to think as I am not doing much with myself at the moment. I'm scared that I will have to wait the full four months for the surgery and I will be in pain for longer. I'm scared that they may find nothing new in the surgery and I will remain in pain even after the surgery.
The plan for my endometriosis is now is
BTW; if you click on anything that is in yellow, it will give you more information on the topic!
In other news, Leo (my partner) and I adopted a beautiful fur baby! Her name is Isa (eye-sa) and she turns 8 next month. She came into the husky rescue which Leo is heavily involved in and due to being a collie x husky she has all the amazing collie traits that fit into our lifestyle perfectly! She is honestly the softest dog I've ever met and cannot help but smile when she is around.
Thank you also to everyone who has been sending me messages and keeping up to date with me. I really appreciate it. It's so lovely and kind.
Will write another blog post after the chronic pain seminar next Tuesday and let you all know how it went.