living life yellow.
the ramblings of a girl with endometriosis
Little bit of a backstory;
Earlier this year, I met Emma at the Canterbury Youth Awards. She had been nominated for a wellbeing award for the work she has done fundraising for endometriosis research and education in schools. Of course, I thought she was the most amazing person in the room, so I invited her to write a blog post.
Hi Jasmine's Blog! My name is Emma Brown and like Jasmine, I too suffer from Endometriosis. I was asked by Jasmine to write up a wee blog of my own to share with you all so I’m going to start with telling you a bit about my journey.
My symptoms first started when I was 14 years old, and like most endo sufferers, I had no idea what was going on. I was confused and in an indescribable amount of pain. From this point on, I had countless doctors appointments, trips to A&E and had a professional gynaecologist telling me that it was “all in your head." I’m sure many of you have felt the exact same way.
I had my first surgery where I got told nothing was wrong, yet when I had my second surgery (which was only months later) I was told that I had been diagnosed with extensive endometriosis. In total, I’ve had 6 surgery’s, and I am now 18 and have just graduated from high school. So for me, high school wasn’t what it was supposed to be. In year 10 I missed out on half a year of school. My friends kept asking me “Why aren’t you at school?” and every time it was the same answer: I’m in too much pain.
I didn’t feel like a normal teenager, because I couldn’t go out and enjoy anything without wanting to crawl into bed. After being told that my surgeon didn’t want to operate on me anymore, I started to explore different avenues. That’s where I found out that I had to go gluten and dairy free, as well as cutting out garlic, onions, mushrooms and red meats out of my diet. This is quite similar to a low fodmap diet, and I do recommend trying it if you are stuck on what to try next. Since having gone off all these things, I have more pain free days than what I do pain days. And I know its not something that will work for everyone, but it’s really worth trying.
Thank you for taking the time to read all of this, and for those of you that are suffering from Endo, keep fighting because you are strong and you can get through absolutely anything.