living life yellow.
the ramblings of a girl with endometriosis
Why is trying to get a diagnosis so frustrating?
I can remember the day I first got my period. I was 12 and a half, and it was ridiculously painful. Not only did it feel like I had been stabbed but it was also crazy heavy. For about 5 years I bled through pads and tampons within an hour or so, and took the days before, during and after my period off school because it was so damn painful to leave bed. Sorry if this is too much information, but this is what I thought was normal.
I have literally tried everything and I still cannot sleep.
Insomnia has been something that I have picked up this year, since my major flare up. I find I'm so exhausted during the day but by the time bedtime comes, I am so wide awake. A lot of the time I'm in too much pain to sleep as well. Sleep is something that I don't do well only having a little bit of too. Anything under 6 hours and I'm going to have nightmare of a day. As I have mentioned in previous blogs, I don't cope well without sleep.
What to do when your skin isn't really sure what it is doing....
As a makeup artist, skincare is VERY important to me. A good base is essential to your makeup looking flawless. Taking care of your skin is also important to reduce the signs of ageing.
At this point in time, I am currently taking 5+ different medications multiple times a day. Due to this my skin is completely crazy. My skin type is combination X1000. I am somehow super oily, but at the same time have dry patches. My skin is also sensitive so products I use must be gentle. I also tend to have regular breakouts. I have put this down to the medications I'm taking influencing my skin.
This week I was lucky enough to receive a package from the gorgeous Jess at Whipsee Skincare. Whipsee SkinCare is a New Zealand made brand and all their products are made with natural ingredients and is 100% cruelty free! Which is super amazing! Also $1 from every product is donated to Tear Fund!
Find out more about Whipsee Skincare:
As most of you will know, by now I am VERY over my endo pains, and am quite willing to try literally anything that may help them. When I came across the "my livia" I was very interested. The "My livia," device is basically a small portable tens machine that is supposedly "turn off" period cramps.
Something Leo and I both have in common is that we both have a desire to travel. Unfortunately, being both students, we do not have the budget to travel. Other things such as not leaving the dog by itself, and me on a waiting list, ready to be called for surgery are also in the way of us jetsetting across the world.
Yesterday, I woke up to find a rather large tent in our backyard. Leo and his father has set up to see the size of it, as it was new. We ended up deciding we would spend the night in it.
6 things I have learnt since being diagnosed with a chronic illness.
As some of you may know, September is Chronic Pain awareness month! I am wanting to take this as an opportunity to share some of the things that I have learnt, mainly within the last couple of months, thanks to my chronic pain.
Three things I never thought would ever go together...
Most girls with endo will probably relate to me when I say endo can sometimes make you look like you are 20 weeks pregnant! A lot of bloating and swelling in your abdomen and pelvic area is not the most flattering look. As a 19 year old, it can be less than ideal to go from a size 10 to a size 16 in the space of minutes. It is also ridiculously uncomfortable for me to wear any clothes that do not have an elastic waistband. It is not fun when your stomach decides to balloon up whilst you are wearing a pair of skinny jeans.
At the start of this month my partner and I went to Cirque du Soleil; Toruk, which I had brought the tickets back in July, not anticipating a huge flare up. This was the first time since my flare up had started, that I actually was going out somewhere in public that wasn't the doctors or hospital. The most important thing for me was to comfortable. But I also wanted to look good, being self conscious and all.
So I ended up wearing my pyjama pants..
Two very small things that get me excited..
Today was a day where I realised that at this point in my life, it doesn't take much to get me excited.
A large part of my is watching what I eat. I try keep to a low FODMAP diet as it can relieve some of my endo symptoms. IBS commonly sits next to endo, which means maintaining an easy digestible diet is super important. However, this is not always easy. There is a very large list of high fodmap foods so actually sticking to it can be discouraging as finding types of food that fit within the guidelines...
Until I was sent a facebook post from a fellow endo friend
What has happened since the initial rant...
My experience with the specialist and my current endometriosis life plan
It has almost been a month since I wrote the first blog post over on my other blog and a lot has happened since then. I suggest you get a cup of tea because it's going to be a long one.
If you read the first blog, you will know that I had been in and out of hospital and now have been waiting to see a specialist. Yesterday I saw a specialist and it didn't go quite the way I expected it to.
This was a post I originally posted to explain what I was going through as many people did not understand. This post was originally written on 14/8/2017.
As some of you may know, on March 15th this year I had a laparoscopic surgery in which I was diagnosed with stage two endometriosis. This has been something I have had symptoms for since I was about 13 years old but was unfortunately misdiagnosed for many years.